As I watched her I knew I had to capture this moment. I understand that raising kids is tough. A lot of times it is not a picnic and really far from it. Lately I have been trying to put my feelings down about how raising a child with a disability is just .... and that is where I get stuck. It is just what exactly, that isn't just like raising a "normal" child. Then last night as Claire was singing at the top of her lungs while hiding out in the pantry doing what she does best... whatever I tell her not to do... I thought of a way I might be able to explain a small thought of what it is like for me.
Claire you fill up MY sense of
Joy with your adorable eyes that turn into rainbows when you really smile.
Happiness with the way you say "ughs!" (hugs)
Frustration when I realize I have no way of knowing if you really understand.
Urgency and worry when I realize you are no where in sight and I have no clue where you have run off to.
Relief when the neighbor down the street has saved you from getting hit by a car.
Sadness for the things you won't get in this life
Amazement at all you have overcome and accomplished in your short 3 years
Compassion.
Love.
Life.
5 comments:
I think Claire was very blessed to be born into such a good family!
We miss Claire! It's so cute that she's already singing John Denver.
Claire bear we sure love you. Can't wait to see you all again. Claire will accomplish a lot in her life because of who she is and the family she has.
That comment was from mom Dougal not Amy. She must not have signed out on my iPad.
I remember last summer the morning before you were going back to Indiana Claire was throwing a fit and you all started singing that song and pretty soon she was singing at the top of her lungs. I immediately bought that song and listen to it all the time. It reminds me of you, Jon and sweet Claire.
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