As I watched her I knew I had to capture this moment. I understand that raising kids is tough. A lot of times it is not a picnic and really far from it. Lately I have been trying to put my feelings down about how raising a child with a disability is just .... and that is where I get stuck. It is just what exactly, that isn't just like raising a "normal" child. Then last night as Claire was singing at the top of her lungs while hiding out in the pantry doing what she does best... whatever I tell her not to do... I thought of a way I might be able to explain a small thought of what it is like for me.
Claire you fill up MY sense of
Joy with your adorable eyes that turn into rainbows when you really smile.
Happiness with the way you say "ughs!" (hugs)
Frustration when I realize I have no way of knowing if you really understand.
Urgency and worry when I realize you are no where in sight and I have no clue where you have run off to.
Relief when the neighbor down the street has saved you from getting hit by a car.
Sadness for the things you won't get in this life
Amazement at all you have overcome and accomplished in your short 3 years
Compassion.
Love.
Life.